Fraudulent participation in online studies

RESEARCH PROJECT

Non-genuine participation in online research

Collaborators

Dr Blandine French

Dr Blandine French

University of Nottingham

Dr Camilla Babbage

MindTech

Dr Ali Alshukry

University of Nottingham

Dr Stefan Rennick-Egglestone

Institute of Mental Health

Dr Jessica Jackson

University of Nottingham

Prof Sarah Cassidy

University of Nottingham

Dr James Tangen

De Montfort University

UK Research Integrity Office

Summary

Online research has become an important way to reach people who may not otherwise be able to take part in studies. It can help researchers include larger and more diverse groups of participants, reduce travel barriers, and make research more accessible.

However, online research also creates new challenges. Some studies are affected by people taking part more than once, giving false information to meet study criteria, using multiple online identities, or completing surveys without properly engaging with the questions. These issues can affect the quality of research data and may lead to findings that do not accurately reflect the experiences of genuine participants.

This work focuses on understanding and raising awareness of the problem of non-genuine participation in online research, particularly in health, mental health and neurodevelopmental research. The aim is to help researchers plan studies more safely, protect the quality of their data, and respond to suspected non-genuine participation in an ethical and proportionate way.

What we have done

We brought together learning from several research teams at the University of Nottingham who had experienced problems with online recruitment, surveys, interviews, focus groups and clinical trials.

This included looking across different types of online research to understand:

  • how non-genuine participation can happen;
  • how researchers notice that something may be wrong;
  • how this affects research projects, participants and researchers;
  • what practical steps can reduce the risk;
  • how to respond fairly when there are concerns about participant authenticity.

This work led to two academic publications and a practical guidance document for researchers. The guidance was developed with a University of Nottingham working group and input from the UK Research Integrity Office.

The guidance supports researchers to think about these issues across the whole research process, including grant applications, ethics applications, recruitment, data collection, analysis and reporting.

What did we find?

We found that non-genuine participation is a growing issue in online research and can affect many different types of studies.

The main issues include:

  • people taking part more than once
  • people giving false information to meet study criteria
  • people pretending to have lived experience of a condition or situation
  • very rapid or patterned survey responses;
  • automated or bot-like responses;
  • responses that are inconsistent with other information provided.

These problems can have a major impact. They can lead to loss of research time, wasted funding, delayed publications, unusable data, and additional pressure on researchers. They can also affect genuine participants and community partners, especially when research involves sensitive lived experiences.

We also found that there is no single solution. Researchers need to plan ahead and use a combination of strategies. These may include clearer recruitment processes, careful wording in adverts, staged recruitment, eligibility checks, monitoring incoming data, delaying payment until checks are completed, and being transparent about how data quality issues were handled.

Importantly, any checks must be proportionate and ethical. Measures designed to protect data quality should not make it harder for genuine participants to take part, especially people from groups who already experience barriers to research involvement.

Publications and training

Guidance

French, B., Rennick-Egglestone, S., Babbage, C., Cassidy, S., Alshukry, A., Jackson, J., & Tangen, J. (2025). Non-genuine Participation in Online Research Guidance on Handling Potential Non-Genuine Participants in Online Research. University of Nottingham.

Full text

Academic papers

French, B., Babbage, C., Bird, K., Marsh, L., Pelton, M., Patel, S., Cassidy, S., & Rennick-Egglestone, S. (2024). Data integrity issues with online studies: An institutional example of a widespread challenge. JMIR Mental Health, 11, e58432.

Full text

French, B., Babbage, C., Cassidy, S., & Rennick-Egglestone, S. (2024). Misrepresentation by online study participants: A threat to data integrity. The Lancet Psychiatry.

Full text

Training

As part of her ongoing knowledge exchange work, Dr French gives ongoing training on this topic through UKRIO (check website for latest dates) and on a consultancy ad-hoc basis. Contact Blandine.french@outlook.com